Family Fun Days
Family Fun Days
Family Fun Days are local events where families affected by ALS can come together to have fun and make new friends!
Previous Family Fun Days have taken place at the CoCo Key Water Resort, where families enjoyed swimming, music, and food; Shady Brook Farms, where we had face painting, pumpkin picking, and a hay ride; and our next Family Fun Day will take place in Fall 2020! Check back soon to learn more!
Camp HLC is a free, 3-day weekend retreat for children and young adults who have had or have a loved one battling ALS or Lou Gehrig's disease. Campers enjoy recreational activities such as swimming, hiking, archery, and more, while also connecting with others who share in their experiences. We now host Camp HLC in six states! Please click here to learn more about Camp HLC and to register!
Hug of Hope Care Packages
There are many families affected by ALS and many of those families have children. In addition to our camps, we can provide a Hug of Hope from afar. A Hug of Hope is a care package that includes an age appropriate gift (stuffed animal or gift card), HLC t-shirt, card, snack, HLC wristband, literature, and a Camp HLC brochure. You can receive a Hug of Hope free of charge with the completion of this application.
Young Ambassador and
Teenagers and young adults ages 15-21 who have attended at least one Camp HLC weekend can apply to become HLC Young Ambassadors. Young Ambassadors will attend meetings, spread awareness about ALS and Hope Loves Company's mission, and build and develop business, writing, public speaking, and marketing skills. If you are interested in becoming an HLC Young Ambassador, please contact Jodi O'Donnell-Ames at firstname.lastname@example.org.
Each year, Hope Loves Company awards one Young Ambassador the Susan B. Anderson Scholarship. This scholarship is awarded to Young Ambassadors attending an accredited 2- or 4-year university who have followed in Susan's example of courage during their ALS journey. Please click here to download the Susan B. Anderson Scholarship application.
We send free educational materials and children's books to families affected by ALS, including:
What Did You Learn Today? written by Tina Singer-Ames
Tina Singer-Ames wrote What Did You Learn Today? for her children, Nora and Adam. The book follows Mrs. Mayer, an elementary school teacher living with ALS, and her students.
The Stars That Shine written by Jodi O'Donnell-Ames
The Stars That Shine is a lovely tribute to all children who live with a disabled or terminally ill parent. Enclosed are resources for ALS patients, their caregivers and children. Although this story is about ALS, the message resonates with all families who live with similar challenges.
Someone I Love Has ALS: A Caregiver Guide edited by Jodi O'Donnell-Ames
"This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." - Jodi O'Donnell-Ames.
Please contact Jodi O'Donnell-Ames at if you're interested in receiving any of our children's books and educational materials. We also include WDYLT?, TSTS, and SILHALS in our Hug of Hope care packages.
See more resources, here.
The HLC Helpline is available to any one who wants to feel supported in their ALS journey. It is totally confidential and is available on Wednesdays and Thursdays from 4:00 to 8:00 PM. Please call 609-730-1144.
Other Programs and Resources
HLC Teen Retreat
The first HLC Teen Retreat took place in September 2018 at the Barn at Gravity Hill in Titusville, NJ. Attendees learned about the uses of various herbs and essential oils; took part in a farm fresh cooking class and and made pizzas in an outdoor brick oven; visited the farm animals; and played music by the campfire. Stay tuned for more information about our next HLC Teen Retreat!
HLC Kids Count ALS Conference
The first HLC Kids Count ALS Conference will take place on October 11, 2019 at the Robert Wood Johnson Conference Center in Hamilton, NJ. Click here to learn more! More information and registration to come soon!